The diagnosis of End Stage Renal Disease (ESRD) has long-term implications, especially psychosocial and financial, for the patient and the family members. The patient and his/her family members experience a lot of fear, anxiety when they learn about the critical nature of the disease. The patient & his family are under severe pressure while searching the kidney donor among family members. Like in any disturbing situation, education and understanding relieves a person of pressure and helps clear doubts. This special education Patient Education Program enables patients to know about the disease and ways to deal with its treatment course. These group meetings enhance compliance & realistic planning of treatment for the patient and family members during the course of hospitalization.
(I) The lectures are given on the following subjects :
|Kidney Failure (Nephrologist)||Kidney failure, causes, treatment alternatives|
|Diet (Dietician)||On maintenance haemodialysis before kidney transplantation & after kidney transplantation|
|Before Kidney Transplantation||Kidney donor check-up & recipient evaluations|
|Living with kidney failure, long term hospitalization, planning & mobilizing funds for treatment & rehabilitation.(Medical Social Worker)|
|Video Cassette demonstration of Kidney Transplantation, (Anesthetist)|
|Kidney Transplant operation & post-transplant surgical complications & its treatment. (Urologist)|
|Post kidney transplant care
|Check-up and medicines for recipient & kidney donor|
|Cadaver Transplant (Nephrologist)||Kidney transplantation by Brain dead organ donor|
Patient Education Program:
The education Program for ESRD patients mainly focuses on promoting health and good quality of life as well as reducing behavior induced disease outcomes. Exposure to knowledge will melt away the barriers of ignorance, prejudices and misconceptions the patients and of their relations may have about ESRD and kidney transplantation.
The lectures by experts are arranged over a span of 4 to 8 days once a month, repeated regularly throughout the year.
Advantages of the patient education program:
- The patients are helped to deal with stresses and find suitable ways to cope with them.
- The awareness about kidney disease is spread among the patient population.
- The patient gets acquainted with the treatment options i.e which mode of treatment to select.
- He learns about donor selection-rejection criteria and protocol for donor selection.
- Kidney donors are made aware about the safety of kidney donation.
- Family members are motivated and encouraged to donate their kidney to their relatives who is suffering from ESRD.
- Kidney donors are prepared psychologically for various laboratory and other tests before kidney donation and shown a film about the scar and other temporary inconveniences he/she may face during the surgery.
- The patient visualises the kidney transplant surgery. He gains knowledge about possible complications that may occur during or after transplant and their treatment.
- The patient is reassured and support in peritreatment period is always available for the patient. This facilitates in preparing the patient psychologically and obtaining patient’s co-operation in case of a problem.
- The patients and his family members meet many other patients and their relatives who are also waiting to undergo transplant. Thus the information and concern are shared and a bond of togetherness is created.
- The discussion with the expert permits patients to verbalize, express and ventilate their feelings.
- The patient is prepared to set a routine, observe temperature, blood pressure and intake output chart. This helps in detecting any problem at its inception.
- The patient is educated regarding regular medications, not missing a single dose of medicine and not altering any dose without consulting his doctor and always keeping adequate stock of medicines, particularly during holidays.
- The patient is helped in planning towards resuming his previous work to become a useful citizen and a useful family member.
- Kidney donors are psychologically prepared for the loss of the transplanted kidney in an occasional recipient, in case of rejection or some other complication.
- Family members are helped to plan for long-term hospitalisation, for stay in the hospital and outside the hospital.
- The relatives are encouraged to take turns in attending to patient’s need while the treatment is going on so that emotional and psychological support is always available for the patient. This helps to strengthen the patient’s emotional well-being.
The involvement of multi-disciplinary team can make a difference in giving compassionate care to ESRD patients.